Jayla was born August 12, 2006 and immediately brought joy into our lives. She was a courageous little girl who despite her everyday challenges had a smile that would brighten any room. When Jayla was 2 years old she was diagnosed with a rare genetic syndrome known as Cockayne Syndrome. With this diagnosis came the unthinkable “a life expectancy between 4-6 years”. From that point on we committed ourselves to filling her life with memories, aquariums, zoos, Disney World, American Girl stores, etc., you name it we tried it.

On August 31, 2012 that “unthinkable” happened and our sweet girl grew her angel wings. Though we miss her every minute of every day it is important for us to keep her amazing spirit alive and bring smiles to the faces of other children who despite their unique challenges, continue to fight, and show what true strength is all about.

 

 
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